After a month spent between the hospital and Loretto, Mom was finally able to go home last week. She was supposed to go home on Tuesday but a cold dropped her oxygen level so she ended up staying until Thursday and promising to use her oxygen during the day, which she never used to do.
The social worker at Loretto was able to set her up with home care services including a visiting nurse, a home health aid, and physical therapy. Granted, this woman does this all the time and knows how things work and Mom was gravely ill for awhile, but maybe if Mom had had some of these services before she wouldn't have ended up in the hospital to begin with. Her doctor has known how we've been struggling but because I could physically get her to his office he would not declare her home bound.
Anyway.... My brother flew in on Thursday and stayed with Mom until yesterday, which was wonderful for Mom and it was good to have someone there while she met with all the new people that will be coming. He drove out here and he and I had a nice visit on Saturday. We usually only see each other for a few hours every few years with both our families all together so it was nice to visit and catch up one to one.
Mom's only insurance is Medicare and that will only pay for all of the people she has coming to the house for just so long so we need a long term plan. My brother and sister went to an open house for PACE on Sunday. I had already called about the program and liked what I heard. They were both very impressed with what they saw and heard. The biggest draw back for Mom is that she would have to give up her doctor. (I personally would be happy to have her switch.) On the up side, they will manage and coordinate all of her care including help at home, doctor visits - including transportation, physical therapy, prescriptions and medical equipment. As an added bonus, she will be required to go to the day center at least once a month. She hates to go out but I know it's good for her and hope she'll go at least once a week and maybe make some friends.
So we have many decisions to make this month and I see more changes ahead for Mom. I'm really hoping that PACE will be the answer to keeping her in her home for as long as possible.